Wednesday, August 13, 2014

You think you want answers...

This entry is all about Jax! Most of you know I have been a throw up cleaning machine the last 2 1/2 months. Jaxon has thrown up in restaurant, cars, movie theaters, stores, everywhere you can imagine. We had a swallow study done on August 11th and the results were less than stellar but we got answers as to why he was throwing up EVERY single day for the last 2 1/2 months. Jaxon has been diagnosed with swallow dysfunction. He has aspirated on about 90% of all liquids that has went into his mouth. Liquids have been going directly into Jaxon's lungs for the last 2 months and he has learned how to cough enough to throw up to prevent pneumonia. Two months ago we were admitted into the hospital with pneumonia and we feel like he has had it the entire time that he has been struggling breathing. Jaxon is so resilient, we thank God that he has been able to continue to walk, run and play with the boys like he has been. The doctors were shocked that he is as healthy as he is and not laying in a hospital bed somewhere. The Lord has been watching over him the last few months, so many things could have turned out worse!

So the game plan is to have his regular liquids restricted for the next 6 months. He can only have thick liquids, the consistency of honey. Then we go back in 6 months for another test and hopefully he can have some thinner liquids. Right now its the thickest that in can go and if this does not work we will have to go to other options like IV fluids or feeding tube. He is still coughing quite a bit so we are not sure what the next steps are. We are going to give it until the end of the week and if he is still coughing then we will have to go back to the GI doctor and discuss another plan of action. Prayers appreciated that his lungs will clear on their own, his esophagus will heal and hopefully we will be back to regular liquids within the next 18-24 months.

We are so thankful for a healthy alive baby. It could have ended so bad and we are counting our blessings and grateful we caught it when we did. Thanks in advance and thank you all for praying while we were gone and the weeks leading up to the appointment.

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