This entry is all about Jax! Most of you know I have been a throw up cleaning machine the last 2 1/2 months. Jaxon has thrown up in restaurant, cars, movie theaters, stores, everywhere you can imagine. We had a swallow study done on August 11th and the results were less than stellar but we got answers as to why he was throwing up EVERY single day for the last 2 1/2 months. Jaxon has been diagnosed with swallow dysfunction. He has aspirated on about 90% of all liquids that has went into his mouth. Liquids have been going directly into Jaxon's lungs for the last 2 months and he has learned how to cough enough to throw up to prevent pneumonia. Two months ago we were admitted into the hospital with pneumonia and we feel like he has had it the entire time that he has been struggling breathing. Jaxon is so resilient, we thank God that he has been able to continue to walk, run and play with the boys like he has been. The doctors were shocked that he is as healthy as he is and not laying in a hospital bed somewhere. The Lord has been watching over him the last few months, so many things could have turned out worse!
So the game plan is to have his regular liquids restricted for the next 6 months. He can only have thick liquids, the consistency of honey. Then we go back in 6 months for another test and hopefully he can have some thinner liquids. Right now its the thickest that in can go and if this does not work we will have to go to other options like IV fluids or feeding tube. He is still coughing quite a bit so we are not sure what the next steps are. We are going to give it until the end of the week and if he is still coughing then we will have to go back to the GI doctor and discuss another plan of action. Prayers appreciated that his lungs will clear on their own, his esophagus will heal and hopefully we will be back to regular liquids within the next 18-24 months.
We are so thankful for a healthy alive baby. It could have ended so bad and we are counting our blessings and grateful we caught it when we did. Thanks in advance and thank you all for praying while we were gone and the weeks leading up to the appointment.
Wednesday, August 13, 2014
Monday, August 4, 2014
The Why and Bye---Game Changer.
Well now most of you know we have moved to Haskell. If you didn't read the post below!
A lot has been on my heart since leaving Deleon. I have struggled with my relationships with my old friends. I have struggled with the move. I have struggled with the thought of having to find a new church. I have struggled with the fear of being disappointed and I have struggled with the fact that we left Deleon and really didn't tell anyone why or bye. So here goes the why...
We were happy and content and loving Deleon and the new friends we were making. I invested a lot of time into a new organization there, I was finally not going to be the new coaches wife, my kids finally weren't going to be the "new kids" and we FINALLY had a summer vacation...
Back up to March---Jeremy receives an email from an athletic director, whom he didn't know, for a position that he didn't apply for, in a town that we have never considered moving to. Haskell, Texas. He read the email and didn't give a second thought to it, our baseball season was in full swing and he happen to mention it to me in passing. I didn't think anything of it and forgot. A few more weeks go by and Jeremy is contacted again, again we blow it off and kind of laugh about it. Baseball season is almost over, school is wrapping up the last few weeks and were getting even more excited about summer break that we don't have to move!
Now its the end of May, Jay's teacher calls me with a situation that has happened with him and two other girls, while being supervised by the teacher something happened that never should have been allowed to escalate to the point that it did. We approached the teacher, who was asked to leave school immediately, principal and superintendent and she assured us that the correct people would be notified. We trusted her. I felt as if it was my fault some how, even though the teacher is the only one that could have prevented what happened. My heart was broken, I trusted the teacher, principal and superintendent. The teacher is still teaching with no repercussion and the superintendent did not follow through with her promise. Regardless we were going to pray and overcome what happened and continue living in Deleon. Then Jeremy's current athletic director was interviewing at other school and that always scares a coach, you never know who might become your boss at the very last minute....The day our current athletic director interviewed our new athletic director called Jeremy and asked him to come one more time to interview, so he did! We cried and prayed and cried some more, we did NOT want to leave Deleon. We loved our students, athletes and parents there so much. We prayed for clarity, guidance, and specific answers and God answered our prayers! We said goodbye to a few special people in our life the day we left and haven't heard from anyone but them in Deleon since we left. I am sorry to those that we didn't say bye too, it was a hard move, it was selfish, we were broken and hurt and didn't even know what to say to anyone. We felt God moving us and it was completely against our will but we prayed so much that He would make it clear to us and He did!
Fast forward, Jeremy is the new head baseball coach at Haskell ISD. We found a huge house in Weinert, Texas, a very small (pop. 179) community about 8 miles outside of Haskell. The boys love it here. They play from sun up to sun down. I have already made several friends here. The women in Haskell are very close. The kids are good. We are happy. I know that God has a plan for us and we will continue to pray for clarity and that we are following His will. We have tried 3 different churches so far and have found one we really like in Anson.
The boys are loving being close to family. They stayed with my mom last weekend. We have Sunday lunch with my granny and pops every Sunday. Went to church with my aunt and uncle. Had breakfast with my great grandma last week. I can run and see my sister anytime I want/need too! It's so much neat being close to family and I am so grateful for the time we weren't close to them to make me realize how precious it really is to be closer to family.
Just over 2 weeks and Finn will be here! We are so excited as is the rest of Haskell! We are finishing his room this week and maybe I will get around to posting a picture or two. I still have to finish his desk and get something for the wall still. Its hard decorating a teenagers room that you have never met before! He is planning on playing football, cross country and baseball and we will see what else he gets into once he is here and settled in. It so strange having a kid in high school but I am looking forward to it so much. Friday nights are going to be that much better when "our" kid is on the field!
Jeremy started two a days today, tomorrow is my day to fix the coaches lunch! I can tell the coaches wives here have a special bond. We are all choosing a day and fixing our coaches lunch one day each week. Tomorrow they are having BBQ chicken sandwiches and I made some sugar cookies for desert! I think I may send some muffins for breakfast too! I just ordered our wife shirts and every wife ordered one! Its so neat to see the wives so bonded. It is hard being a coaches wife and without the support of the others who are living it, it is that much harder. I am already so grateful for this group of women and the other friends I have met so far. This is the most welcomed we have ever felt. I feel like we have lived here forever already. God has blessed us.
HEALTH UPDATE---Jaxon's test are going to be August 11th at Dallas and hopefully we will get some answers right after the test. We are also testing him for a milk allergy to see if that may be the underlying issue!
I think that's all that's going on now...I am going to try to blog regularly once school gets back in session! If you made it this far...thanks for reading! :)
A lot has been on my heart since leaving Deleon. I have struggled with my relationships with my old friends. I have struggled with the move. I have struggled with the thought of having to find a new church. I have struggled with the fear of being disappointed and I have struggled with the fact that we left Deleon and really didn't tell anyone why or bye. So here goes the why...
We were happy and content and loving Deleon and the new friends we were making. I invested a lot of time into a new organization there, I was finally not going to be the new coaches wife, my kids finally weren't going to be the "new kids" and we FINALLY had a summer vacation...
Back up to March---Jeremy receives an email from an athletic director, whom he didn't know, for a position that he didn't apply for, in a town that we have never considered moving to. Haskell, Texas. He read the email and didn't give a second thought to it, our baseball season was in full swing and he happen to mention it to me in passing. I didn't think anything of it and forgot. A few more weeks go by and Jeremy is contacted again, again we blow it off and kind of laugh about it. Baseball season is almost over, school is wrapping up the last few weeks and were getting even more excited about summer break that we don't have to move!
Now its the end of May, Jay's teacher calls me with a situation that has happened with him and two other girls, while being supervised by the teacher something happened that never should have been allowed to escalate to the point that it did. We approached the teacher, who was asked to leave school immediately, principal and superintendent and she assured us that the correct people would be notified. We trusted her. I felt as if it was my fault some how, even though the teacher is the only one that could have prevented what happened. My heart was broken, I trusted the teacher, principal and superintendent. The teacher is still teaching with no repercussion and the superintendent did not follow through with her promise. Regardless we were going to pray and overcome what happened and continue living in Deleon. Then Jeremy's current athletic director was interviewing at other school and that always scares a coach, you never know who might become your boss at the very last minute....The day our current athletic director interviewed our new athletic director called Jeremy and asked him to come one more time to interview, so he did! We cried and prayed and cried some more, we did NOT want to leave Deleon. We loved our students, athletes and parents there so much. We prayed for clarity, guidance, and specific answers and God answered our prayers! We said goodbye to a few special people in our life the day we left and haven't heard from anyone but them in Deleon since we left. I am sorry to those that we didn't say bye too, it was a hard move, it was selfish, we were broken and hurt and didn't even know what to say to anyone. We felt God moving us and it was completely against our will but we prayed so much that He would make it clear to us and He did!
Fast forward, Jeremy is the new head baseball coach at Haskell ISD. We found a huge house in Weinert, Texas, a very small (pop. 179) community about 8 miles outside of Haskell. The boys love it here. They play from sun up to sun down. I have already made several friends here. The women in Haskell are very close. The kids are good. We are happy. I know that God has a plan for us and we will continue to pray for clarity and that we are following His will. We have tried 3 different churches so far and have found one we really like in Anson.
The boys are loving being close to family. They stayed with my mom last weekend. We have Sunday lunch with my granny and pops every Sunday. Went to church with my aunt and uncle. Had breakfast with my great grandma last week. I can run and see my sister anytime I want/need too! It's so much neat being close to family and I am so grateful for the time we weren't close to them to make me realize how precious it really is to be closer to family.
Just over 2 weeks and Finn will be here! We are so excited as is the rest of Haskell! We are finishing his room this week and maybe I will get around to posting a picture or two. I still have to finish his desk and get something for the wall still. Its hard decorating a teenagers room that you have never met before! He is planning on playing football, cross country and baseball and we will see what else he gets into once he is here and settled in. It so strange having a kid in high school but I am looking forward to it so much. Friday nights are going to be that much better when "our" kid is on the field!
Jeremy started two a days today, tomorrow is my day to fix the coaches lunch! I can tell the coaches wives here have a special bond. We are all choosing a day and fixing our coaches lunch one day each week. Tomorrow they are having BBQ chicken sandwiches and I made some sugar cookies for desert! I think I may send some muffins for breakfast too! I just ordered our wife shirts and every wife ordered one! Its so neat to see the wives so bonded. It is hard being a coaches wife and without the support of the others who are living it, it is that much harder. I am already so grateful for this group of women and the other friends I have met so far. This is the most welcomed we have ever felt. I feel like we have lived here forever already. God has blessed us.
HEALTH UPDATE---Jaxon's test are going to be August 11th at Dallas and hopefully we will get some answers right after the test. We are also testing him for a milk allergy to see if that may be the underlying issue!
I think that's all that's going on now...I am going to try to blog regularly once school gets back in session! If you made it this far...thanks for reading! :)
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