We have had several doctors appointments with Jaxon lately. Recently he had a EDG scope, biopsy and a PH Impedance Study done. What was supposed to be an outpatient procedure ended up being an overnight hospital stay because his O2 levels would not stay up like they should have. We added a pulmonologist to the list of doctors that he sees and he is working with us to keep Jaxon safe while we wait on the results of the PH study, which will tell us if Jaxon has acid reflux and how severe it is. The biopsy showed severed erosion of the esophagus so we are anticipating the results to show significant acid reflux. We have also been sent to a Neurologist and recently had a CT scan done, the results were normal so we only have to go back there for a 6 month follow up. In the meantime Jaxon takes 4-6 breathing treatments per day, 2 oral medications and all his liquids must be thickened to honey consistency to prevent aspiration. Depending on the results of all the test we will know what the treatment plan looks like, right now we have the possibility of a feeding tube and/or a fundo. A fundo is a procedure that will close the stomach off from allowing food/liquids to be thrown up. He appears to be happy and not in to much pain and other than throwing up, coughing, and choking there are no other symptoms. He has not thrown up since Wednesday (TWO WHOLE DAYS!!) and we seem to finally have the coughing under control for now. We have to be very careful with liquids and clean air, he cant be around smoke of any kind and even dust bothers him but for the most part he appears to be healthy from the outside looking in.
Jay has been doing GREAT in school, we are so pleased with his behavior and his attitude. He seems to have made friends with the more well behaved students, which is unusual for him, he tends to play with the other at risk students more.
Michael is loving school too, no surprise there. His teacher says that he is very smart. He has adapted well to new friends, new classroom, and the challenges of first grade! He has an amazing teacher that we are so thankful for!
Biscuit, oh Biscuit same ol same ol! Making new friends and girl friends and he loves going to practice with Daddy.
Now for the newest team member, Finn! Wow, it has been so much fun having him around. He is hilarious. He tries everything, hardly complains and seems like he has been part of the family forever. He has jumped right in at school and made good friends. He ran his first cross country meet ever and placed 5th out of 120+ varsity level boys! He will suit up with the Varsity tonight for his first ever American Friday night football game! Jeremy and I are reluctant to consider hosting another student for fear he might not be as eager to live the American way as Finn.
Larry is doing well as far as I know! He has really struggled with the thoughts that we have replaced him. Which is not true at all, he is 21 and its time for him to be an adult. (Which he is!!) He is working full time at the grocery store in Deleon and has an apartment of his own. We are so proud that he is taking responsibility for his own life. Its so hard to let go of your kids knowing that they are going to struggle (like everyone else that moves out on their own) but for his sake I had to let go. I had to stop running to the rescue or protecting him from anything that might teach him a valuable life lesson! Anyways- I am proud of who he is becoming!
Now for Haskell--- I know it sounds cliché but I cant believe how great it is here. We are close to our family, I have made friends, good close girl friends, quicker than I have in any other town we have lived in. Everyone has been more than willing to help with the boys during Jaxon's health problems, the coaches wives are very close, the senior mom's have taken me right in. For the first time Jeremy and I both have friends here before football season is over. The struggles of being a coaches wife have been minimal with all the support. We have lunch with my grandparents on Sundays after church and we have visited almost every church in town searching for the right one for our family. We have visited Jeremy's aunt and uncle in Anson. I get to see my sister often and our friends here are quickly becoming like family!
Here are a few pictures from Finn's welcome to America Party!!!
No comments:
Post a Comment